[AfSHG-Listserv] Fwd: Governing Genetic Databases - conference announcement

[Branwen Hennig]

FYI
 

 
----- Original Message ----- 
Sent: Monday, April 07, 2008 2:01 PM
Subject: [Everyone] Governing Genetic Databases - conference announcement

Governing Biobanks - What are the challenges?
24th - 26th June 2008
St. Anne*s College, Oxford, United Kingdom

Registration and programme details are available at
http://ggd.org.uk/index.cfm?fuseaction=events.content&cmid=28 

*****Wellcome Trust has given us support to fully fund 8 places for people 
from developing countries -please contact biobanking at ethox.ox.ac.uk for more details ****

The aim of this conference is to explore some of the complex and
challenging issues that emerge from the governance of biobanks. This
issue is becoming more pressing, as we see rapid technological
advances in genotyping, the accumulation of large datasets of freely-available
sequence information, moves by funders towards open access policies,
and the establishment of population biobanks that collect genotypic and
phenotypic data, as well as plans to link these across international
boundaries. The intention is to reflect on the internal governance
mechanisms that have been developed for biobanks and to understand the
rationale and principles that underpin them. There is also a need to
explore the global governance mechanisms that should be put in place
to facilitate harmonised systems for data-sharing at a global level,
whilst at the same time protecting the interests of all stakeholders.

Confirmed Speakers:
Prof. Martin Bobrow University of Cambridge ,  UK
Prof. Tim Caulfield, Health Law Institute, University of Alberta, Canada
Prof. Susan Leigh Star, Santa Clara University,  USA
Prof David Weisbrot, President of the Australian Law Reform Commission, Australia
Prof. Alastair Campbell, National University of Singapore, Singapore
Prof. Bartha Maria Knoppers, University of Montreal, Quebec,  Canada
Prof. Peter Glasner, CESAGen, Cardiff University  UK
Dr. David Winickoff, University of California , Berkeley, USA
Prof Jeong-Ro Yoon, Korean Advanced Institute of Science and Technology,  Korea
Prof. Michael Burgess, University of British Columbia , Vancouver, Canada
Dr. Beverley McNamara, University of Western Australia,  Australia
Ass. Prof. Bjorn Myskja, Norwegian University of Science and Technology,  Norway
Dr. Christine Hine, Department of Sociology, University of Surrey,  UK
Prof. Michael Parker, University of Oxford, UK
Prof. Margaret Otlowski, University of Tasmania, Australia
Dr. Susan Wallace, Université de Montréal, Canada
Dr. Trudo Lemmens, University of Toronto, Canada
Prof. Martin Richards, Ethics and Governance Council, UK
Dr . Arlene M Davis & Dr. R. Jean Cadigan, University of North Carolina, USA
Mr Linus Johnsson, Centre for Bioethics at Karolinska Institutet and Uppsala University, Sweden
Dr. Carolyn Tarrant, University of Leicester, UK
Dr. Gill Haddow, University of Edinburgh, Scotland
Ms Kirsten Hens, Katholieke Universiteit Leuven, Belgium
Ms Caitlin M Connors & Mr Aaron Martin, LSE, UK
Dr. Lindsey Brown, University of Oxford, UK
Mr Lukas Gundermann,  Unabhängiges Landeszentrum für Datenschutz (ULD), Germany
Dr. Antonio Casado da Rocha, University of the Basque Country, Spain
Dr. Kelly Fryer-Edwards, University of Washington, USA
Ms Salvor Nordal, University of Iceland, Iceland
Mr David Townend, Department of Law, Sheffield University,  UK
Ms Atieh Zarabzadeh, Trinity College, Dublin, Eire
Dr. Simon Woods, Policy, Ethics & Life Sciences Reasearch Institute (PEALS), Newcastle University, UK
Dr. Nicholas Andersen, University of Washington, USA
Ms Emmanuelle Rial-Sebagg, INSERM, Toulouse, France
Prof. Herbert Gottweis, University of Vienna,  Austria
Assoc. Prof. Kazuto Kato, Institute for Research in Humanities and Graduate School of Biostudies, Japan
Prof. Darryl Macer, Regional Unit for Social & Human Sciences in Asia & the Pacific, UNESCO Bangkok
Ms Nadja K. Kanellopoulou, University of Edinburgh, UK
Mr Kuan-hsun Chen, UCLA, USA
Asst Prof. Dianne Nicol, University of Tasmania, Australia
Dr. Graham Lewis, University of York, UK
Dr. Martin Yuille, University of Manchester, UK
Prof. Loane Skene, University of Melbourne, Australia
Mr Morten Andreasen, University of Copenhagen, Denmark
Prof. Graeme Laurie, University of Edinburgh, Scotland
Dr Jane Kaye, Research Fellow, Wellcome Trust, Ethox Centre, University of Oxford UK

Please distribute widely to mail lists and  people who you think may be interested. 
For more information please contact
biobanking at ethox.ox.ac.uk 

This conference is an initiative of the Governing Genetic Databases
Project, funded by the Wellcome Trust and based at the Ethox Centre,
University of Oxford, and organised in conjunction with the Centre for
Genetics and Law, Universities of Melbourne and Tasmania, Australia.


Dr. Jane Kaye
Wellcome Trust Research Fellow
Ethox Centre
University of Oxford
Badenoch Building
Old Road Campus
Headington
Oxford OX3 7LG

Tel: (Direct) +44 (0)1865  287898
Fax: +44 (0)1865 287884
Email: jane.kaye at ethox.ox.ac.uk 
Web-site: www.ggd.org.uk ( http://www.ggd.org.uk/ )





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